Hawaii consumers urged to protect genetic data after 23andMe files for bankruptcy

HONOLULU (KHON2) — The Hawaii Department of Commerce and Consumer Affairs (DCCA) is warning residents to be cautious with their personal information following 23andMe’s bankruptcy filing.

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The state’s Office of Consumer Protection (OCP) is advising consumers to manage their genetic data carefully, offering steps to delete or limit access to the information stored with the company.

On March 23, 23andMe, a direct-to-consumer genetic testing company, filed for bankruptcy. In a press release, the company said it plans to sell most of its assets while continuing to operate normally during the process. While 23andMe has assured customers that no changes are planned for how it stores or protects data, the bankruptcy raises concerns that the company may sell customers’ genetic data as part of the proceedings.

Hawaii residents who want to delete or limit the use of their genetic data with 23andMe can follow these steps:

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How to Delete Genetic Data:

  1. Sign in to your account at www.23andme.com.
  2. Go to the “Settings” section of your profile.
  3. Scroll to the “23andMe Data” section and click “View.”
  4. Download your data if you want to keep a copy.
  5. Select “Permanently Delete Data.”
  6. Confirm deletion by following the email instructions.

How to Destroy Your 23andMe Test Sample:

  • If you want to opt-out of having your DNA sample stored, go to the “Preferences” section in your account settings.

How to Revoke Research Consent:

  • If you allowed 23andMe or third-party researchers to use your data, you can withdraw consent in the Research and Product Consents section.

OCP Executive Director Mana Moriarty stressed the importance of taking action: “Consumers can demand the removal and destruction of their genetic data from 23andMe. We encourage all customers to protect their sensitive information from misuse or unauthorized access.”

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The DCCA is committed to safeguarding the privacy of Hawaii residents and will continue monitoring the situation. For more information on consumer protection in Hawaii, visit the DCCA website at https://hdcca.hawaii.gov/s/.

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